God’s Work on Full Display

Three weeks from today, Hope will be undergoing open heart surgery for the fifth time. After the success of the complex bi-ventricular repair she had in August, we had hoped she would be done with open heart surgeries, at least for a long time, if not forever. We knew her mitral valve was leaky and … Continue reading God’s Work on Full Display

He Faithful Will Remain

Be still, my soul... I hummed it to Hope as a newborn baby, bundled in my arms, the day before her first heart surgery. I hummed it to her in the ICU last month as she gripped my finger and my heart overflowed with joy at feeling her hold my hand again. And I hum … Continue reading He Faithful Will Remain

The Road Goes Ever On

Nine days after her third heart surgery, our little "Wonder Woman" was discharged from the hospital. We celebrated that night with play time in our apartment and delicious local takeout for dinner, but the real celebration came the next afternoon when we arrived home and the girls were reunited. Watching their sweet hug was the … Continue reading The Road Goes Ever On

Worth It

Hope has her third heart surgery tomorrow. That's not a sentence I ever imagined or wished to write about my child. For quite a while this path that she has to walk was hard for me to accept. I kept dwelling on what her life would have, could have, and should have looked like if … Continue reading Worth It