Dear Hope, I've shared some of your journey here for the past five years. I've written so that people could pray and come alongside us, and they have, in ways that I will forever be grateful for. I've written so I could process the thoughts and emotions I've wrestled with along the way. And I've … Continue reading He Will Not Fail You
Tag: heterotaxy
He Faithful Will Remain
Be still, my soul... I hummed it to Hope as a newborn baby, bundled in my arms, the day before her first heart surgery. I hummed it to her in the ICU last month as she gripped my finger and my heart overflowed with joy at feeling her hold my hand again. And I hum … Continue reading He Faithful Will Remain
The Road Goes Ever On
Nine days after her third heart surgery, our little "Wonder Woman" was discharged from the hospital. We celebrated that night with play time in our apartment and delicious local takeout for dinner, but the real celebration came the next afternoon when we arrived home and the girls were reunited. Watching their sweet hug was the … Continue reading The Road Goes Ever On
Worth It
Hope has her third heart surgery tomorrow. That's not a sentence I ever imagined or wished to write about my child. For quite a while this path that she has to walk was hard for me to accept. I kept dwelling on what her life would have, could have, and should have looked like if … Continue reading Worth It
Is He Enough?
Last fall, not long before Hope was born, I lay in bed staring at the full moon outside. I don't remember what was keeping me up, probably some worry over the baby girl with the mixed up heart growing inside me, but I remember a thought suddenly coming to mind. A question really. One that … Continue reading Is He Enough?
Even If
Recently I found the classic VeggieTales movie Rack, Shack and Benny to watch with Natalie for the first time. While I nostalgically sang along with tunes I hadn't heard in years, Natalie anxiously half-covered her eyes with her hands. "I don't want to see the fire," she pleaded. She has learned the real story of … Continue reading Even If
He Knows Me
I thought I knew God. I grew up learning about Him at home, at church, at camps, and through my own study and prayer. I attended a Christian college and was just a handful of credits short of a minor in religion thanks to all the Bible courses I took as electives. I knew my … Continue reading He Knows Me
Our Hope
Our little daughter, Hope Joanna, was born on November 16 at 4:13 am. She weighed 7 lbs 2 oz and was 19.29 inches long. Hearing her cry when she arrived was such a wonderful sound and seeing her beautiful little face brought such joy. After birth Hope was doing better than expected and I am … Continue reading Our Hope