Three weeks from today, Hope will be undergoing open heart surgery for the fifth time. After the success of the complex bi-ventricular repair she had in August, we had hoped she would be done with open heart surgeries, at least for a long time, if not forever. We knew her mitral valve was leaky and … Continue reading God’s Work on Full Display
Tag: heart defect
He Faithful Will Remain
Be still, my soul... I hummed it to Hope as a newborn baby, bundled in my arms, the day before her first heart surgery. I hummed it to her in the ICU last month as she gripped my finger and my heart overflowed with joy at feeling her hold my hand again. And I hum … Continue reading He Faithful Will Remain
When I Look at You
When I look at you, I see wide eyes full of wonder. As a newborn, long before you could talk, your eyes spoke volumes. I’ll never forget how you looked, tiny face peeking out from a swaddled bundle, wide eyes staring up at me. I was terrified, feeling so inadequate to care for you and … Continue reading When I Look at You
Choose Life
A year ago today we sat in the ultrasound room as a doctor presented us with a choice. Since then I've felt, many times, that I should share this piece of our story, but something always held me back. Even now I'm anxious remembering those moments and considering how to piece together what I want … Continue reading Choose Life
Waiting on the Edge of Battle
Ever since receiving our baby girl's diagnosis, a scene from Lord of the Rings has been replaying in my head. Pippin, a hobbit known more for his curiosity-induced mischief than any sort of bravery or prowess in war, has been made a Guard of the Citadel in Gondor, where the battle for Middle Earth will … Continue reading Waiting on the Edge of Battle
Some Good News and More Waiting
Fifteen days ago we found out that our baby girl had several serious complications including fluid around her lungs and a heart defect. Today was our follow up appointment - an ultrasound and meeting with the doctor and genetic counselor. For fifteen days we have prayed and wept over this little girl... both for a … Continue reading Some Good News and More Waiting
Come Sojourn 