Fifteen days ago we found out that our baby girl had several serious complications including fluid around her lungs and a heart defect. Today was our follow up appointment – an ultrasound and meeting with the doctor and genetic counselor.
For fifteen days we have prayed and wept over this little girl… both for a miracle and for God’s strength and comfort to carry on if she isn’t healed.
As the sonographer spread the gel on my stomach this afternoon I stared at the screen, waiting for the image of our baby to appear. I was afraid of seeing more of that black space in her little body… that black space that meant fluid building up.
Her sweet profile came up on the screen…
… and then the sonographer began a close examination of her heart. As I watched I thought that something looked different. I didn’t want to get my hopes up, but it seemed like maybe, just maybe, the fluid wasn’t there.
Then the sonographer herself commented that the fluid was reduced. She had seen our pictures from two weeks ago and wasn’t seeing that same fluid today!
Later the doctor came in with words that confirmed the news – the fluid is gone!! It is, in her words, “surprisingly good news” and we are praising God for this wonderful answer to prayer!
We still have a long road ahead. The heart condition is a serious concern and potentially complex. We’ll be seeing a pediatric cardiologist in the near future in hopes of getting some more information and guidance moving forward.
There are a lot of unanswered genetic questions that we are waiting for as well. We do have the general chromosomal results back and everything was normal, ruling out things like Down Syndrome or Turner Syndrome, but we hope to get more results in the coming weeks.
The doctor’s prognosis has gone from “dire” to a chance of the baby surviving and, with successful surgery and no genetic issues, potentially living a healthy life.
We know that God has the final say on this sweet girl. He knows the number of her days and He knows exactly what is going on in her little body, even as we – her parents and the medical teams – continue to wait for answers.
I am so thankful for the healing that has already taken place and of course pray for further healing. We long to bring our daughter home healthy and strong, but we love her no matter what happens in the coming weeks and months.
We know God continues to walk with us every step of the way. Last week I shared the words of Deuteronomy 31:8 and they still ring true today: “The Lord is the one who goes ahead of you; He will be with you. He will not fail you or forsake you. Do not fear or be dismayed.” I don’t know how I would make it through without Him going ahead of us and holding us in His hands.
I can’t end without also saying that we are beyond grateful for the overwhelming outpouring of love and prayers and support we have received in these past two weeks. Thank you so very much! Please continue to lift us and our little girl up before the Lord!