We had our appointment with the pediatric cardiologist today for a fetal echocardiogram (a detailed ultrasound of the heart). We have some more information and potential scenarios moving forward, however there are also some things that cannot be determined yet and most likely won’t be able to be fully known until after the baby is born.

Here’s what we know at this point: There is an unbalanced atrioventricular septal defect. Basically the septum that is supposed to separate the two ventricles hasn’t formed fully as it should. So instead of a right and left ventricle there’s sort of one combined ventricle. On a positive note – still no fluid!

Here’s what we don’t know: The aortic arch looks a little small but it can be hard to see on the ultrasound. It will need to be checked for possible coarctation (narrowing of the aorta) at birth. Also need to keep checking that arteries and veins go to the right places.

Potential scenarios: They’ll need to look at the baby’s heart when she is born, but we’re likely looking at multiple (possibly three?) surgeries. Depending on what they find, one surgery may be required right away, or we might be able to wait a few weeks for the first one. Either way we’re probably looking at a NICU stay after birth, which could be as long as 4-6 weeks. Thankfully there are no concerns regarding my ability to carry to term and have a normal delivery.

So… this is a lot to take in. Honestly, I’m overwhelmed and exhausted by it all. Our baby girl has a complicated little heart and it’s scary, as a mom, to think of all these things that are wrong with your child. I wish things were different and am going to continue praying for a miracle, but am also trying to mentally prepare for what may be ahead.

Please keep the prayers coming and thank you again for all the support.

PS If any of this was totally confusing you’re not alone! I have a biology degree and even pulled out my old college textbook yesterday in preparation for this appointment and it’s still a bit much. This site is pretty good with a diagram and basic explanation of a normal heart if you want – http://www.chop.edu/pages/how-normal-heart-works